Learning that your baby has Down syndrome can feel overwhelming—but you are not alone. We are here for you from the very beginning with hope, connection, and trusted guidance.
In the first few weeks of your baby’s arrival, we welcome you into our community with a personalized gift basket—delivered to the hospital or your home—filled with comfort items, helpful resources, and a reminder that you are supported.
From there, we walk beside you with family gatherings, individualized support, vetted resources, and parent mentors who truly understand this journey. All support is confidential, compassionate, and tailored to your family’s needs.
We make sure you are connected to a community that understands, encourages, and celebrates your child.
You deserve to feel supported, understood, and never alone. From the very beginning, we are here for you and your family as you welcome your baby with Down syndrome—every step of the way.
-
Personalized Support Tailored to Your Family
-
Trusted Parent Mentors Who Understand Your Journey
-
Opportunities to Connect Through Group and One-on-One Gatherings
-
Vetted Resources to Keep You Informed and Empowered
MEET OUR TEAM
Alyssa Jones, New Parent Outreach Specialist
Occupational Therapist
Alyssa Jones serves as the initial and primary point of contact for parents and caregivers who are expecting a child with Down syndrome or have a young child with Down syndrome between the ages of 0 and 2 years old. Alyssa holds a degree in Psychology with an emphasis in Human Development from Vanguard University and a certification in Nonprofit Management from the University of California, Irvine. She is a mother to two boys, and intimately understands the importance of community support for families affected by Down syndrome. She brings a rich background in childhood development, education, and the arts.
Your Next Step - Reach Out
You’ve found Down Syndrome Innovations—your partner through every stage of your child’s journey. Next, please complete this form so we can support you and send your Welcome Baby Basket!
SERVICES & SUPPORTS
Care Notebooks
The My Care Notebook is a practical and personalized tool designed to help you stay organized, with space to track medical information, emergency contacts, educational resources, and local services—all customized with your child’s photo on the front cover.
Medical Journey Support
Our Medical Journey Support provides families with trusted, up-to-date care guidelines and vetted resources to help you navigate medical appointments, understand your child’s needs, and advocate with confidence.
Parent to Parent Program
Our Parent to Parent program connects you with a seasoned mentor parent who has walked a similar journey, offering understanding, encouragement, and real-life insight as you navigate life with a new Down syndrome diagnosis.
Follow-up Consultations
We provide ongoing follow-up consultations to support your family’s evolving needs, answer questions, and help you navigate each stage of your journey with confidence.
Music and Motion
Music and Motion is a fun, developmentally supportive class for babies, toddlers, and their caregivers, combining music, movement, and sensory play. Each session also offers time for parents to connect over coffee and conversation.
New Parent Breakfast
Our New Parent Breakfast is a warm, welcoming gathering where families who have recently received a Down syndrome diagnosis can connect with other parents, learn from and talk with a few parent mentors, and discover the support available to them.
Welcome Baby Basket
Our Welcome Baby Baskets are a heartfelt way to celebrate your little one—filled with meaningful gifts, helpful resources, and a warm message to remind you that you’re supported every step of the way. We personally deliver them to the hospital or your home, whenever you’re ready.
Welcome Visit
We offer personalized Welcome Visits either in your home or at our campus, providing a supportive space to ask questions, receive resources, and connect with a caring team member.
