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Privacy Policy

1. Our Commitment to Privacy
Down Syndrome Innovations (KCDSI) respects your privacy and is committed to protecting the personal information of individuals with Down syndrome, families, donors, volunteers, program participants, and website visitors. This Privacy Policy explains how we collect, use, store, and protect your information when you visit our website, register for programs, participate in services, make donations, or interact with us online.
2. Information We Collect
We may collect personal information when you:

  • Register for programs or services

  • Complete family intake forms

  • Make a donation

  • Sign up for events or newsletters

  • Apply for employment or volunteer opportunities

  • Participate in virtual programs

  • Submit contact forms or surveys

Personal Information May Include:

  • Name and contact information

  • Email address and phone number

  • Mailing address

  • Emergency contact information

  • Participant or family support information

  • Employment or volunteer application details

  • Payment and donation information

  • Photos, videos, or testimonials you submit

3. Information About Minors
Many KCDSI programs serve minors.
We collect information about minors only:

  • With parent or legal guardian consent

  • For program participation, support services, or educational resources

Parents or guardians may request to review, update, or delete their child’s information at any time by contacting us.
4. How We Use Your Information
We use collected information to:

  • Provide programs and services

  • Communicate with families and participants

  • Process donations and payments

  • Register individuals for events

  • Coordinate volunteers and employment programs

  • Provide virtual programming

  • Share organizational updates and newsletters

  • Improve services and website functionality

  • Meet legal and compliance requirements

5. Donations & Payment Processing
Online donations are processed through secure third-party payment platforms.
KCDSI does not store full credit card numbers on our servers.
Payment processors have their own privacy and security policies.
6. Virtual Programs & Online Platforms
We may use third-party platforms (such as Zoom or learning platforms) for virtual classes and meetings.
When participating in virtual programs:

  • Basic participant information may be shared with the platform provider

  • Sessions may include chat features or participant interaction

We encourage participants to avoid sharing sensitive personal information during public virtual sessions.
7. Media, Photos & Testimonials
KCDSI may capture photos or videos during programs, events, or virtual activities.
Media may be used for:

  • Marketing and outreach

  • Educational materials

  • Social media

  • Fundraising and promotion

Parents or guardians provide consent for minors unless written opt-out is provided.
8. Cookies & Website Analytics
Our website may use cookies and analytics tools to:

  • Understand website usage

  • Improve user experience

  • Monitor traffic and engagement

You may adjust browser settings to disable cookies if preferred.
9. How We Protect Your Information
KCDSI uses reasonable administrative, technical, and physical safeguards to protect personal information.
While we strive to maintain secure systems, no online transmission or storage system can be guaranteed 100% secure.
10. Sharing of Information
We do not sell or rent personal information.
We may share information with:

  • Trusted service providers (payment processors, email systems, program platforms)

  • Event partners or collaborators when required for participation

  • Legal or regulatory authorities when required by law

Information is shared only when necessary to operate programs and services.
11. Third-Party Websites
Our Site may contain links to external websites.
KCDSI is not responsible for the privacy practices or content of third-party sites.
12. Your Choices & Rights
You may:

  • Request access to your personal information

  • Request corrections or updates

  • Request removal from email communications

  • Request deletion of certain data (where permitted by law)

To make a request, contact us using the information below.
13. Data Retention
We retain personal information only as long as necessary to:

  • Provide services

  • Maintain organizational records

  • Meet legal, financial, or program requirements

14. Policy Updates
We may update this Privacy Policy periodically.
Updates will be posted on this page with a revised effective date.

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