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Let's Grow
Awareness Together

We celebrate Down syndrome every day but On March 21st and the Month of October we celebrate EXTRA!

Let's Empower and Celebrate People with Down syndrome!

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Information About Down syndrome:

  • 1 in every 691 babies in the United States is born with Down syndrome.

  • More than 250,000 people in the U.S. are living with Down syndrome.

  • It occurs across all races and economic backgrounds.

  • Life expectancy has increased dramatically — from 25 years in 1983 to around 60 years today.

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For more information about What is Down syndrome?:

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World Down Syndrome Day is March 21st!


World Down Syndrome Day is celebrated each year on March 21st. In 2006, the 21st day of March was selected to signify the uniqueness of the triplication of the 21st chromosome that causes Down syndrome.

REGISTER FOR KC CELEBRATION
REGISTER FOR CENTRAL MO CELEBRATION
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Shop Communi-TEES

A percentage of every Charlie Hustle x Down Syndrome Innovations Tee and Onesie is donated back February 21 - October 31.

Our Impact in 2025

57,024

hours delivered of direct engagment and support.

2,581

individuals with Down syndrome and their Families accessing our programs, resources, and support.

42

years serving the Down syndrome community, building impact in Kansas City Since 1984.

830

individuals with Down syndrome received specialized engagment. 

Upcoming Events & Fundraisers

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18 APR

321 Fit

A fitness event for all ages, in collaboration with the University of Kansas Medical Center and Special Olympics – Johnson County Community College - Learn More

Start Now

27 APR

Step Up for Down Syndrome Golf Tournament - Central Missouri

Columbia, MO, Learn More

Start Now

14 SEP

Step Up For Down Syndrome Golf Tournament - Kansas City

Oakwood Country Club, Kansas City, MO  - Learn More

Start Now

3 OCT

31st Annual Step Up For Down Syndrome Walk

Truman Sports Complex

Start Now
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