What is Down Syndrome?
Down syndrome is a genetic condition where individuals have an extra copy of chromosome 21. This extra chromosome can cause developmental delays, intellectual disability, and certain physical characteristics. While individuals with Down syndrome may have various challenges, many lead fulfilling lives with appropriate support.
Down syndrome is a lifelong condition. Babies born with Down syndrome will grow and develop like all other babies, but those with Down syndrome generally develop at a somewhat slower pace.
People with Down syndrome may have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer's disease, childhood leukemia, and thyroid conditions. However, many of these conditions are treatable, and people with Down syndrome lead long, healthy lives.
Children with Down syndrome may be delayed in achieving milestones such as walking, talking, and eating compared to neurotypical children. Individuals with Down syndrome possess varying degrees of cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.
Life expectancy for people with Down syndrome has increased dramatically in recent decades, from 25 in 1983 to 60 and older today.
Individuals with Down syndrome are becoming increasingly integrated into society and the community. People with Down syndrome attend school, work, participate in decisions that affect them, and contribute to society in many wonderful ways. Quality educational programs, a stimulating home environment, good health care, and positive
ADDITIONAL SERVICES
Our Impact in 2025
57,024
hours delivered of direct engagment and support.
2,581
individuals with Down syndrome and their Families accessing our programs, resources, and support.
42
years serving the Down syndrome community, building impact in Kansas City Since 1984.
830
individuals with Down syndrome received specialized engagment.